WELCOME

“I am a mother, wife,
chronic pain warrior,
rare disease advocate,
blogger and business
owner with a fierce
passion to leave my
mark”

BLOG

My blog started as a simple way to express myself and manage the daily struggles with my sons rare disease, parenthood, and being a woman and mother. Little did I know it would become so much more then my little diary…

THE THOMAS FAMILY

At the core of everything I do is my family. They are my why and my biggest motivation. We are a family who constantly chooses to commit to each other everyday, whether life is hard, easy, beautiful, or ugly. We make a conscious decision to weather the storm alongside each other. We don’t have all the answers – just our experiences, which we hope can benefit and impact other people who are walking in similar shoes.

PODCAST

Our family had the pleasure of interviewing over 20 BWS families from around the world to learn about their experiences and help get their story out. We called these our Because We’re Strong Segments. We have now turned those stories along with other chronic illness and invisible struggles into a podcast. Our podcast is a place for those who struggle silently to no longer do so. We want people to share their voice and their story in the hopes of creating change.

INTERVIEW: Golara Haghtalab & Immigrant: Courage Required Because We Are Strong

Hey, Peeps welcome to this bonus episode of because we are strong. Today I am so excited to introduce you to an up-and-coming author who I happened to have stumbled upon while strolling on Instagram. Golara author of Immigrant courage required. The invisible challenges of the estimated 272 million international migrants is a topic that needs to be brought to light now more than ever._____________________________________________________________________Purchase a copy of Immigrant: Courage RequiredBarnes and Nobels: https://www.barnesandnoble.com/w/immigrant-golara-haghtalab/1140101131?ean=9781636764979Amazon: https://www.amazon.com/Immigrant-Courage-Required-Golara-Haghtalab-ebook/dp/B09DTJLLQF/ref=cm_cr_arp_d_product_top?ie=UTF8Connect with Golara:Instagram: @g_o_l_a_r_aInquiry email: bookimmigrant@gmail.com_____________________________________________________________________This podcast was sponsored by: That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. Support the show (https://www.patron.com/findyourrare)
  1. INTERVIEW: Golara Haghtalab & Immigrant: Courage Required
  2. INTERVIEW: Fez Awan & His Three Kidneys
  3. INTERVIEW: D-REK & The Angel Warriors
  4. INTERIVEW: Seth Rotberg & Our Odyssey
  5. INTERVIEW: Charles Mickles & The Fight To Choose Hope

CONNECT

Let’s work together! Available for social media influencing & marketing.

FAVORITE ADVOCACY APPAREL

WHATEVER YOU ARE OWN.IT TEE

I love this shirt because I feel it can apply to so many people and their situations. Its bold and makes a statement!

SCRIPTED RARE. CROPPED CREW

I love this cropped crew neck because it raises awareness but also elevates your style. Its comfortable and looks great with leggings or my personal favorite – high waisted jeans

MOM WITH A MISSION FIERCE TEE

I often say that I am always on a mission when it comes to my children. This shirt is super cute and is my favorite print – camo!

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