“I am a mother, wife,
chronic pain warrior,
rare disease advocate,
blogger and business
owner with a fierce
passion to leave my


My blog started as a simple way to express myself and manage the daily struggles with my sons rare disease, parenthood, and being a woman and mother. Little did I know it would become so much more then my little diary…


At the core of everything I do is my family. They are my why and my biggest motivation. We are a family who constantly chooses to commit to each other everyday, whether life is hard, easy, beautiful, or ugly. We make a conscious decision to weather the storm alongside each other. We don’t have all the answers – just our experiences, which we hope can benefit and impact other people who are walking in similar shoes.


Our family had the pleasure of interviewing over 20 BWS families from around the world to learn about their experiences and help get their story out. We called these our Because We’re Strong Segments. We have now turned those stories along with other chronic illness and invisible struggles into a podcast. Our podcast is a place for those who struggle silently to no longer do so. We want people to share their voice and their story in the hopes of creating change.

INTERVIEW: Tori and Congenital Heart Defect Because We Are Strong

Meet Tori:Tori is a congenital heart defect survivor and has undergone multiple open-heart surgeries and procedures throughout her life, including a life-changing visit to the ER where she narrowly escaped cardiac arrest and was defibrillated 3 times. Sharing her story of resilience and lessons for living victoriously, Tori is a bestselling author of the book, From Vulnerable to Victorious: Turning Your Chronic Illness Into Your Victory Story. Growing up, she was an avid athlete, participating in volleyball, basketball, and track in high school. She went on to play volleyball at Corban University and later joined the track team at George Fox University as a high jumper.With a heart for others affected by chronic illnesses such as CHD, Tori started a lifestyle blog where she shares lifestyle and chronic illness tips. Part of her mission is to have a “heart that beats for others.”  Tori does this through her blog and chronic illness coaching program, where she coaches CHD warriors on creating a game plan to thrive with CHD and use their experiences for impact and purpose. _________________________________________Connect with Tori:Learn more about the book here: https://www.amazon.com/dp/B09J43644Q/Website: https://www.torijoygeiger.com/Instagram: https://www.instagram.com/torijoygeiger/Facebook: https://www.facebook.com/torijoygeigerDiscounted Ebook For RARE Listeners: https://www.torijoygeiger.com/ebookdiscount (Use Code RARE for 100% off the ebook download)____________________________________________This episode was produced and edited by : Ruwan Basnayake___________________________________________This episode is sponsored by: The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.Support the show
  1. INTERVIEW: Tori and Congenital Heart Defect
  2. INTERVIEW: Kenzi Paquin & Cervical Cancer
  3. INTERVIEW: Lindsay
  4. INTERVIEW: Marie & R.A.R.E Advocates
  5. INTERVIEW: Amber


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I love this shirt because I feel it can apply to so many people and their situations. Its bold and makes a statement!


I love this cropped crew neck because it raises awareness but also elevates your style. Its comfortable and looks great with leggings or my personal favorite – high waisted jeans


I often say that I am always on a mission when it comes to my children. This shirt is super cute and is my favorite print – camo!


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