Michael Jr. and I found these random painted rocks at Tyler Park. The one stats "I choose peace" and the other "I'm a survivor"
Big Piece of Humble Pie – eat it and learn
Blog Feed
Motivation & ignorance – a fuel to be reckoned with
Dedicated to those who stoke my fire - Thank you for continuing to remind me everyday why what I am doing is so important. Thank you for being my motivation-Mom of a mountain mover Something that I find incredibly difficult when it comes to Beckwith-Wiedemann Syndrome is figuring out other peoples reaction to Owen’s physical [...]
You are a diamond
After sharing a lot about my husband on social media, I realized that most people don’t know our story. I could take up pages telling you every detail about him and I but I won’t bore you to death! What I really hope you take from our story is that you deserve to be happy. [...]
RARE. – 10 things you didn’t know
If you have followed me for a while now, you most likely know that in January K (Kristine), and I decided we were stronger together, and I became the COO of RARE. An apparel and accessories brand that dedicates its platform to raising awareness for rare diseases and invisible illnesses. K started RARE. as a [...]
The pieces that make you whole
In a world where hate seems to so easily seep out of peoples soul and out of their skin, it is hard to remember that you are enough. It can be hard to remember that the pieces that make you whole are important. The differences in each and everyone of us is what makes the [...]
Leave your mark. What journey will you take?
It wasn’t until Owen was recently hospitalized that I realized how much of an impact he has had on people. Most of those people he has never even met. Choosing to share our family's story has turned into so much more than I expected. Sometimes it's overwhelming. Sometimes it’s stressful and quite honestly sometimes I [...]
The Scars you will never see.
Scar, - noun- a mark left on the skin; a lasting effect of grief, fear, or other emotion left on a person's character by - a traumatic experience. Most people think that scars are what they can see. What they can touch. People don’t realize that there are many scars you can’t see. Scars of memories. [...]
Autism – The Perfect Puzzle Piece
Autism Is not something Owen has, yet it is not foreign to my family. My husband works with autistic children and adults so it’s not something I am completely unfamiliar with. However, I didn’t gain a true appreciation for autism and the struggles that come with it until Owen was diagnosed with sensory defensive disorder. [...]
A Mom’s Medical Marijuana Journey
Several times I thought about writing a blog post on this. Each time I came close, I pulled away because I was unsure what kind of judgment and scrutiny I would receive. But the more I thought about it, I realized that writing a blog post on my medical marijuana journey may help someone. It [...]
Decisions
Have you ever had to try and make decisions based on something unknown? Sounds kind of impossible right? How could you possibly make an informed decision about something when you don’t have all the facts? You don’t have all the answers or information. Imagine how terrifying those decisions become when you're making them about your [...]
Never Prepared
A little over a year ago my family and I faced a situation that we never saw coming. A situation that statistically is very low and that "only" happens to medically compromised adults or children. You are never prepared for situations like the one we were in last January. You are never prepared to watch [...]
