Michael Jr. and I found these random painted rocks at Tyler Park. The one stats "I choose peace" and the other "I'm a survivor"
Dedicated to those who stoke my fire - Thank you for continuing to remind me everyday why what I am doing is so important. Thank you for being my motivation-Mom of a mountain mover Something that I find incredibly difficult when it comes to Beckwith-Wiedemann Syndrome is figuring out other peoples reaction to Owen’s physical [...]
If you have followed me for a while now, you most likely know that in January K (Kristine), and I decided we were stronger together, and I became the COO of RARE. An apparel and accessories brand that dedicates its platform to raising awareness for rare diseases and invisible illnesses. K started RARE. as a [...]
It wasn’t until Owen was recently hospitalized that I realized how much of an impact he has had on people. Most of those people he has never even met. Choosing to share our family's story has turned into so much more than I expected. Sometimes it's overwhelming. Sometimes it’s stressful and quite honestly sometimes I [...]
Scar, - noun- a mark left on the skin; a lasting effect of grief, fear, or other emotion left on a person's character by - a traumatic experience. Most people think that scars are what they can see. What they can touch. People don’t realize that there are many scars you can’t see. Scars of memories. [...]
Autism Is not something Owen has, yet it is not foreign to my family. My husband works with autistic children and adults so it’s not something I am completely unfamiliar with. However, I didn’t gain a true appreciation for autism and the struggles that come with it until Owen was diagnosed with sensory defensive disorder. [...]
Have you ever had to try and make decisions based on something unknown? Sounds kind of impossible right? How could you possibly make an informed decision about something when you don’t have all the facts? You don’t have all the answers or information. Imagine how terrifying those decisions become when you're making them about your [...]
A little over a year ago my family and I faced a situation that we never saw coming. A situation that statistically is very low and that "only" happens to medically compromised adults or children. You are never prepared for situations like the one we were in last January. You are never prepared to watch [...]