Michael Jr. and I found these random painted rocks at Tyler Park. The one stats "I choose peace" and the other "I'm a survivor"
Big Piece of Humble Pie – eat it and learn
Blog Feed
Beckwith-Wiedemann Syndrome: A warrior diagnosis
A BWS Guest Blog post by Megan Albrecht “Promise me you’ll always remember you are braver than you believe, stronger than you seem, smarter than you think, and loved more than you’ll ever know.” This very quote hangs in the nursery of our NICU Graduate, Kasey. October 14, 2017, our lives changed forever. After a restless night of what I thought [...]
BWS – Twice as Blessed
A Guest Blog Post by Chantal Woods Hi! My name is Chantal and I live in Nova Scotia, Canada, with my husband and our two boys. Our BWS story started with a complete surprise when my water broke more than 4 weeks before my due date. My pregnancy had been pretty uneventful except for having [...]
BWS Times 3
A guest blog post by Meredith Swartzendruber Hello!! My name is Meredith, and my band of BWS warriors and I live in Maine. My husband Adam and I have two sons, Ayden (8) and Kalvin (4). All three of the males in my house have BWS...that means 75% of my family. It’s just the dog [...]
Baby A: Defeating the odds
A guest BWS blog post by Jillian Smith Our BWS story started in March of 2018. It was my second ultrasound with the twins. The shock of being pregnant with twins just two months after having our first son had finally wore off and we were so excited to find out the genders. My hometown [...]
BWS in utero
A guest blog post: Meet the Charlebois Family I'd like to start this off by introducing myself! My name is Crystal, I am from Ontario, Canada where i live with my little family, my husband Shaun and our 3 beautiful daughters, Cherokee (7), Grace (6) & Lennon (23 months, BWS). I guess our BWS story [...]
From IVF to BWS
Meet the Kramlik Family Hello! We are the Kramlik Family. I am Sarah, my husband is Mate and our son is Thomas. We were one of the fortunate families to know that Thomas was going to be born with BWS. It was at our 22-week ultrasound that they suspected something was wrong. Thomas was an [...]
Under Investigation – A BWS Families Story
Meet the Reuter Family - A BWS Guest Blog Post I’ll start by introducing myself. My name is Megan. My husband, Jeremy, and I have 3 boys. Riley is 9, Brenden is 6, and Liam is 2. Our family has been through a lot already, making our story a long and unique one. When Liam [...]
Social Media: The good, the bad, & the ugly
Social media is a tricky thing to navigate for anyone. It's much trickier for people who have children that don't "fit the norm". The fact that I even have to write that bothers me, but it's true. I have been sharing my family and our story on social media for a year and a half [...]
An unexpected career change
This isn't the life I planned or even the life I necessarily wanted. Contrary to what people think, I had an amazing career before blogging. A career I loved. I never had the desire to be a full time stay at home mom or a blogger. Don't get me wrong I LOVE my kids and [...]
Changing the ignorant narrative
As a rare disease family it occurred to me quickly that the rest of the world is ignorant. Let me clarify that. You aren't necessarily a malicious person if you are ignorant. It just means that you may not be aware of how harmful some of your statements can be. Our family has experienced a [...]