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Motivation & ignorance – a fuel to be reckoned with

Motivation & ignorance – a fuel to be reckoned with

Dedicated to those who stoke my fire - Thank you for continuing to remind me everyday why what I am doing is so important. Thank you for being my motivation-Mom of a mountain mover Something that I find incredibly difficult when it comes to Beckwith-Wiedemann Syndrome is figuring out other peoples reaction to Owen’s physical [...]

You are a diamond

You are a diamond

After sharing a lot about my husband on social media, I realized that most people don’t know our story. I could take up pages telling you every detail about him and I but I won’t bore you to death! What I really hope you take from our story is that you deserve to be happy. [...]

Leave your mark. What journey will you take?

Leave your mark. What journey will you take?

It wasn’t until Owen was recently hospitalized that I realized how much of an impact he has had on people. Most of those people he has never even met. Choosing to share our family's story has turned into so much more than I expected. Sometimes it's overwhelming. Sometimes it’s stressful and quite honestly sometimes I [...]

Autism – The Perfect Puzzle Piece

Autism – The Perfect Puzzle Piece

Autism Is not something Owen has, yet it is not foreign to my family. My husband works with autistic children and adults so it’s not something I am completely unfamiliar with. However, I didn’t gain a true appreciation for autism and the struggles that come with it until Owen was diagnosed with sensory defensive disorder. [...]

A Mom’s Medical Marijuana Journey

A Mom’s Medical Marijuana Journey

Several times I thought about writing a blog post on this. Each time I came close, I pulled away because I was unsure what kind of judgment and scrutiny I would receive. But the more I thought about it, I realized that writing a blog post on my medical marijuana journey may help someone. It [...]

Decisions

Decisions

Have you ever had to try and make decisions based on something unknown? Sounds kind of impossible right? How could you possibly make an informed decision about something when you don’t have all the facts? You don’t have all the answers or information. Imagine how terrifying those decisions become when you're making them about your [...]