BWS Times 3

BWS Times 3

A guest blog post by Meredith Swartzendruber Hello!! My name is Meredith, and my band of BWS warriors and I live in Maine. My husband Adam and I have two sons, Ayden (8) and Kalvin (4). All three of the males in my house have BWS...that means 75% of my family. It’s just the dog [...]

BWS in utero

BWS in utero

A guest blog post: Meet the Charlebois Family I'd like to start this off by introducing myself! My name is Crystal, I am from Ontario, Canada where i live with my little family, my husband Shaun and our 3 beautiful daughters, Cherokee (7), Grace (6) & Lennon (23 months, BWS). I guess our BWS story [...]

From IVF to BWS

From IVF to BWS

Meet the Kramlik Family Hello! We are the Kramlik Family.  I am Sarah, my husband is Mate and our son is Thomas.  We were one of the fortunate families to know that Thomas was going to be born with BWS.  It was at our 22-week ultrasound that they suspected something was wrong.  Thomas was an [...]

Cancer – Care Before: A BWS Q & A with Amber

Cancer – Care Before: A BWS Q & A with Amber

Amber is the mother of Vivian. A 3 and a half-year-old little girl diagnosed with Upd Beckwith-Wiedemann Syndrome and most recently Stage 4 Wilm's Cancer. I connected with Amber on Instagram and have watched her family's journey with her daughter. Vivian had an ultrasound in December of 2019 and no cancer was seen. Fast forward [...]