In August of 2019 I was searching a hashtag on instagram that was related to rare diseases and up popped RARE. A brand dedicated to raising awareness for rare diseases and invisible struggles. I reached out to Kristine, the CEO asking her if she was interested in having me influence her brand for her. I am very selective when it comes to influencing and only like to influence for brands that have meaning for me, or brands that I love. Rare disease holds a special place in my heart because of Owen, so I knew immediately that I wanted to be involved in her brand. We began to speak often and started coming up with different products for the BWS community.

In early January during a phone call with each other she asked me to be her partner. I immediately without hesitation accepted despite the fact that we have never met each other! Together we are creating a brand and a community for people to have an outlet to use their voice. Not only do we raise awareness for rare disease we also are dedicated to giving back to the community by donating 15% of every sale towards a non-profit of our customers choosing at checkout. Together we hope to advance conversations and research in rare disease. 


Our cropped RARE. Signature logo Tee comes in a variety of styles and colors. This is one of my favorite shirts to throw on with jeans, a pair of leggings or even work out with in the gym
Our OWN.IT line was created and inspired by my Son Owen and his rare disease BWS. It takes after his name and be a nice reminder to Own your RARE. & the strength that comes with it.
We have started to expand our menswear and added this moisture week charcoal Greater Than Shirt, which is perfect for the beach, gym, or pretty much anywhere you are headed.
Our summer 2020 line featured two figure flattering swimsuits for all body shapes & sizes. This one piece is a perfect staple to have in your closet.
This dress is effortless and easy and perfect to throw on over a swimsuit or just wear on its on on a hot day. The quote featured is something my brother said to me.
Our highest waisted scripted RARE. Swimsuit is figure flattering, sexy without being sleazy, and keeps everything where it is supposed to be! The suit is perfect for the everyday active woman!
Every woman needs an easy go to tank, that is comfortable yet has some style edge. Our scripted RARE. High neck tank is figure flattering and easy to throw on with a pair of jeans and elevate your look. Avail in White, Black, Charcoal, & Mauve
If you have learned anything about BWS children I hope it is that their strength is unmatched. These children show their strength everyday with what they go throw. Our Dino BWS strong shirt celebrates that strength!
Two peas in a pod. My boys love rocking their Own.It & RARE. Shirt. These children’s shirts are meant to look great but also give children the tools to own their RARE. & be able to proudly share about whatever their RARE. Is