Beckwith-Wiedemann Syndrome: A warrior diagnosis

Beckwith-Wiedemann Syndrome: A warrior diagnosis

A BWS Guest Blog post by Megan Albrecht “Promise me you’ll always remember you are braver than you believe, stronger than you seem, smarter than you think, and loved more than you’ll ever know.” This very quote hangs in the nursery of our NICU Graduate, Kasey.                          October 14, 2017, our lives changed forever. After a restless night of what I thought [...]

BWS in utero

BWS in utero

A guest blog post: Meet the Charlebois Family I'd like to start this off by introducing myself! My name is Crystal, I am from Ontario, Canada where i live with my little family, my husband Shaun and our 3 beautiful daughters, Cherokee (7), Grace (6) & Lennon (23 months, BWS). I guess our BWS story [...]