Beckwith-Wiedemann Syndrome: A warrior diagnosis

Beckwith-Wiedemann Syndrome: A warrior diagnosis

A BWS Guest Blog post by Megan Albrecht “Promise me you’ll always remember you are braver than you believe, stronger than you seem, smarter than you think, and loved more than you’ll ever know.” This very quote hangs in the nursery of our NICU Graduate, Kasey.                          October 14, 2017, our lives changed forever. After a restless night of what I thought [...]

Cancer – Care Before: A BWS Q & A with Amber

Cancer – Care Before: A BWS Q & A with Amber

Amber is the mother of Vivian. A 3 and a half-year-old little girl diagnosed with Upd Beckwith-Wiedemann Syndrome and most recently Stage 4 Wilm's Cancer. I connected with Amber on Instagram and have watched her family's journey with her daughter. Vivian had an ultrasound in December of 2019 and no cancer was seen. Fast forward [...]