Beckwith-Wiedemann Syndrome: A warrior diagnosis

Beckwith-Wiedemann Syndrome: A warrior diagnosis

A BWS Guest Blog post by Megan Albrecht “Promise me you’ll always remember you are braver than you believe, stronger than you seem, smarter than you think, and loved more than you’ll ever know.” This very quote hangs in the nursery of our NICU Graduate, Kasey.                          October 14, 2017, our lives changed forever. After a restless night of what I thought [...]

BWS in utero

BWS in utero

A guest blog post: Meet the Charlebois Family I'd like to start this off by introducing myself! My name is Crystal, I am from Ontario, Canada where i live with my little family, my husband Shaun and our 3 beautiful daughters, Cherokee (7), Grace (6) & Lennon (23 months, BWS). I guess our BWS story [...]

From IVF to BWS

From IVF to BWS

Meet the Kramlik Family Hello! We are the Kramlik Family.  I am Sarah, my husband is Mate and our son is Thomas.  We were one of the fortunate families to know that Thomas was going to be born with BWS.  It was at our 22-week ultrasound that they suspected something was wrong.  Thomas was an [...]