Social Media: The good, the bad, & the ugly

Social Media: The good, the bad, & the ugly

Social media is a tricky thing to navigate for anyone. It's much trickier for people who have children that don't "fit the norm". The fact that I even have to write that bothers me, but it's true. I have been sharing my family and our story on social media for a year and a half [...]

Motivation & ignorance – a fuel to be reckoned with

Motivation & ignorance – a fuel to be reckoned with

Dedicated to those who stoke my fire - Thank you for continuing to remind me everyday why what I am doing is so important. Thank you for being my motivation-Mom of a mountain mover Something that I find incredibly difficult when it comes to Beckwith-Wiedemann Syndrome is figuring out other peoples reaction to Owen’s physical [...]